Stay tuned as well for our official online Petition that we’ll launch on the first day of Endometriosis Awareness Month, March 1st, 2019. (You can read Dr. Nezhat’s preliminary statement here).

For now, see below for a few ways you can take action now.

Text RESIST to 50409 to get in touch with your district’s elected officials all via text. You could copy and paste the templates listed at the end of this page or of course do feel free to write your own statement about why it’s urgent that Congress works with endometriosis patient advocacy groups to establish an Endometriosis National Action Plan, just like the Australian government and have already done, or are in the process of completing.


You can copy and paste the template letter below and post on Facebook or Instagram, where, in most cases, you can tag your district's elected officials if they have active accounts. Click here to find the name and contact information for your district's elected officials, based on your zip code and address; 


You can copy & paste the template below and either email or mail it to your district's U.S. Representatives. Click here to find the contact information for your elected officials, based on your zip code and address. 




Dear U.S. Senators and Congressional Representatives:

I am one of the thousands of endometriosis advocates who’ll be supporting the Worldwide Endometriosis March (EndoMarch) taking place on Saturday, March 30, 2019, in dozens of cities around the world, including in the U.S. cities of Atlanta, Chicago, Las Vegas, Los Angeles, New York City, San Francisco, and Washington, D.C.

Endometriosis is an incurable, chronic disease that can potentially cause incapacitating pain, organ dysfunction, infertility, and other severe and sometimes life-threatening medical consequences if inadequately treated.

Endometriosis has been described as one of the most painful diseases on record, is the third leading cause of gynecologic hospitalization, and is one of the leading causes of the estimated 600,000 hysterectomies performed each year in the U.S. (despite the fact that a hysterectomy cannot actually cure endometriosis).

However, endometriosis is not just a reproductive tract disease, but one which can potentially cause severe chronic symptoms throughout the entire body, such as system-wide crippling pain, severe chronic fatigue, immune & endocrinologic dysfunction, and damage to multiple organs and tissues, including the bowel, bladder, ureters, diaphragm, muscles, musculoskeletal structures, nerves, lungs, and liver.

And, although one rarely hears about it in the news, endometriosis is actually common, affecting at least 1 in 10 women, girls, and transgender individuals, usually of reproductive age. That works out to a disease which is nearly as common as diabetes in women, affecting roughly 8-10 million people in the U.S. and 200 million worldwide.

Despite these alarming facts, endometriosis continues to be one of the most urgent yet ignored public health issues of our time, and those afflicted face unacceptably lengthy diagnostic delays of up to 10 years or more. Some have even gone 20-40 years without a proper diagnosis. This is truly appalling, and we ask today:

‘How many more women and girls will be harmed before endometriosis is recognized as an urgent public health issue?’

With gynecologic-related diseases still steeped in stigma, it’s been an uphill battle to get the issue of endometriosis covered in the news. That’s why it would mean so much to the millions of endometriosis sufferers across our nation, whose lives have been devastated by this invisible disease, if you would help champion a task force or bill to get endometriosis recognized as an urgent public health issue, deserving of more NIH research funding. We also need an HHS-backed nationwide awareness campaign in public schools, where young girls first begin missing so much school, have their incapacitating symptoms dismissed as normal, and are even denied medical care altogether because so many end up being falsely labeled as drug-seekers or malingerers.

Our sister chapters from over 60+ countries will also be marching with us on EndoMarch Day. We hope you as well will consider supporting this global movement, so that we can be the generation that finally takes a stand against centuries of silence, suffering, and shame. After all, women shouldn’t have to march in the streets in the first place to receive basic medical care. The millions who suffer from a disease described as more painful than child birth labor deserve better.

Thank you for considering our cause.

An Endometriosis Advocate & Concerned Citizen
Constituent of the [insert your state & congressional district]