Inappropriate medical care causing significant harm

The United States does not invest enough in the health of its citizens who suffer from Endometriosis. Endometriosis is nearly as prevalent as diabetes in women, yet receives only pennies on the dollar in federally-funded spending on research and public health awareness campaigns.  

Lifetime of crippling pain and failed treatments

Women, girls, and transgender individuals with endometriosis can face a lifetime of incapacitating pain, organ failure, repeat surgeries, acute abdomen, infertility, diagnostic delays of up to 10 years or more, increased risk for certain cancers, increased risk for cardiovascular disease, and multiple failed treatments that don't work or cause severe injury from adverse side effects. There is no cure for endometriosis and no known cause.

Something must change

The millions who suffer from this excruciating, chronic disease deserve better. That’s why you’ll see thousands of endometriosis sufferers and supporters marching in the streets all over the world each year in March for Endometriosis Awareness Month and EndoMarch Day, to get the word out that endometriosis is not just a bad period, but one of the most serious, potentially debilitating diseases women, girls, and transgender individuals can face in their lifetimes.

Still, those suffering from a severe, chronic illness shouldn’t have to march in the streets in the first place to receive basic medical care. 

We need congress to act

That's why we can't wait any longer for change to happen. We need Congress to act. We need Endometriosis Health Care Reforms now.

Sincerely,

Camran Nezhat, M.D.,

Endometriosis Specialist &
Founder, Worldwide EndoMarch & World Endometriosis Day
Palo Alto, California, USA
www.nezhat.org

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TAKE ACTION - WAYS TO PETITION CONGRESS

See below for a few ways you can take action now and join the Petition Congress campaign:
 
1) You can click here to sign the online Petition for Endometriosis Health Care Reforms; 
 
2) You can copy and paste the template letter below and post on Facebook or Instagram, where, in most cases, you can tag your district's elected officials if they have active accounts. Click here to find the name and contact information for your district's elected officials, based on your zip code and address; 

3) You can copy & paste the template below and either email or mail it to your district's U.S. Representatives. Click here to find the contact information for your elected officials, based on your zip code and address. 

4) You can click here to add your name or organization to the EndoMarch Wall of Warriors Mural and EndoMarch awareness t-shirts.

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TEMPLATE LETTER


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Dear U.S. Senators and Congressional Representatives:

I am one of the thousands of endometriosis advocates who’ll be supporting the Worldwide Endometriosis March (EndoMarch) taking place on Saturday, March 30, 2019, in dozens of cities around the world, including in the U.S. cities of Atlanta, Chicago, Las Vegas, Los Angeles, New York City, San Francisco, and Washington, D.C.

CRUEL, CRIPPLING, & INCURABLE
Endometriosis is an incurable, chronic disease that can potentially cause incapacitating pain, organ dysfunction, infertility, and other severe and sometimes life-threatening medical consequences if inadequately treated.

Endometriosis has been described as one of the most painful diseases on record, is the third leading cause of gynecologic hospitalization, and is one of the leading causes of the estimated 600,000 hysterectomies performed each year in the U.S. (despite the fact that a hysterectomy cannot actually cure endometriosis).

WHOLE-BODY DISEASE
However, endometriosis is not just a reproductive tract disease, but one which can potentially cause severe chronic symptoms throughout the entire body, such as system-wide crippling pain, severe chronic fatigue, immune & endocrinologic dysfunction, and damage to multiple organs and tissues, including the bowel, bladder, ureters, diaphragm, muscles, musculoskeletal structures, nerves, lungs, and liver.

And, although one rarely hears about it in the news, endometriosis is actually common, affecting at least 1 in 10 women, girls, and transgender individuals, usually of reproductive age. That works out to a disease which is nearly as common as diabetes in women, affecting roughly 8-10 million people in the U.S. and 200 million worldwide.

DEVASTATING DISEASE STILL LARGELY IGNORED
Despite these alarming facts, endometriosis continues to be one of the most urgent yet ignored public health issues of our time, and those afflicted face unacceptably lengthy diagnostic delays of up to 10 years or more. Some have even gone 20-40 years without a proper diagnosis. This is truly appalling, and we ask today:

‘How many more women and girls will be harmed before endometriosis is recognized as an urgent public health issue?’

A BILL FOR THE 115th CONGRESS
With gynecologic-related diseases still steeped in stigma, it’s been an uphill battle to get the issue of endometriosis covered in the news. That’s why it would mean so much to the millions of endometriosis sufferers across our nation, whose lives have been devastated by this invisible disease, if you would help champion a task force or bill to get endometriosis recognized as an urgent public health issue, deserving of more NIH research funding. We also need an HHS-backed nationwide awareness campaign in public schools, where young girls first begin missing so much school, have their incapacitating symptoms dismissed as normal, and are even denied medical care altogether because so many end up being falsely labeled as drug-seekers or malingerers.

60+ COUNTRIES MARCHING WITH US
Our sister chapters from over 60+ countries will also be marching with us on EndoMarch Day. We hope you as well will consider supporting this global movement, so that we can be the generation that finally takes a stand against centuries of silence, suffering, and shame. After all, women shouldn’t have to march in the streets in the first place to receive basic medical care. The millions who suffer from a disease described as more painful than child birth labor deserve better.

Thank you for considering our cause.

Sincerely,
An Endometriosis Advocate & Concerned Citizen
Constituent of the [insert your state & congressional district]